It's Not Yet Dark: A Memoir

by Simon Fitzmaurice

“A fiercely eloquent testament to making the most out of every moment we're given.” 

 —People, Book of the Week 

 

A luminous memoir in the tradition of The Diving Bell and the Butterfly and a #1 bestseller upon its initial release in Ireland, a young filmmaker gives us “a story of courage, of heart, of coming back for more, of love and struggle and the power of both” (Joseph O'Connor).

  • Format: Hardcover
  • ISBN-13/ EAN: 9781328916716
  • ISBN-10: 1328916715
  • Pages: 176
  • Publication Date: 08/01/2017
  • Carton Quantity: 24

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About the Book
About the Author
Excerpts
Reviews
  • About the Book
    “A fiercely eloquent testament to making the most out of every moment we're given.” 

     —People, Book of the Week 

     

    A luminous memoir in the tradition of The Diving Bell and the Butterfly and a #1 bestseller upon its initial release in Ireland, a young filmmaker gives us “a story of courage, of heart, of coming back for more, of love and struggle and the power of both” (Joseph O'Connor). 

     

    In 2008, Simon Fitzmaurice was diagnosed with ALS, or Lou Gehrig’s disease. He was given four years to live. In 2010, in a state of lung-function collapse, Simon knew with crystal clarity that now was not his time to die. Against all prevailing medical opinion, he chose to ventilate in order to stay alive. 

      

    In It’s Not Yet Dark, the young filmmaker, a husband and father of five small children, draws us deeply into his inner world. Told in simply expressed and beautifully stark prose, it is an astonishing journey into a life that, though brutally compromised, is lived more fully than most, revealing at its core the potent power love has to carry us through the days. 

      

    Written using an eye-gaze computer, It's Not Yet Dark is an unforgettable book about relationships and family, about what connects and separates us as people, and, ultimately, about what it means to be alive.

  • About the Author
  • Excerpts
    The brave 

      

    I am a stranger. A different breed. I move among you but am so different that to pretend I am the same only causes me pain. And yet I am the same, in as many ways as I am different. I am a stranger. 

     

    I observe your meaning on television, through song and writing. I was once like you. But I often feel distant from you. 

     

    My meaning has faces, names. Totems. The words we utter. Every breath of us is meaning. 

     

     

    Everyone notices but no one sees. 

     

    On the streets, in the crowds, no one sees. 

     

    I was once invisible. I moved among you, invisible in my disguise. Now I am difference made manifest. I cannot hide. I move with a force field that makes you avert your eyes. Only children see me. You gather them together when I draw near but they do not look away. You cross the street from me but your children do not look away. They are still looking for the definition of man. 

     

    I frighten you. I am a totem of fear. Sickness, madness, death. I am a touchstone to be avoided. 

     

    But not by all. The brave approach. Women. Children. Some rare men. And I am shaken awake. 

     

    Those I count as friends are the brave. 

      

      

     

    Holding my breath 

      

    I’m driving through the English countryside. A narrow road rising up to a tall oak tree. It could be Ireland. The call comes just before I reach the tree. It’s my producer and she is excited. She has just received a call from the Sundance Film Festival, saying they would like to screen our film. I feel something shift inside me. She talks quickly, then gets off. I pass the tree. She calls back. Says she got another call and that they are really excited to screen our film. We exchange words of jubilation I can’t remember and say goodbye. I’m driving down the country road and I am changed. 

     

     

    I have been to many other festivals. I don’t know why this one means so much to me. Maybe it’s because I grew up within my father’s world of cinema, where Robert Redford was a legend. The Natural was one of our favourite films. I don’t know. But I’ve often wondered if that was the moment motor neurone disease, or amyotrophic lateral sclerosis (ALS), began in me. That I had been holding my breath for years. And suddenly let go. And that something gave in that moment. Something gave. 

     

     

    My foot drops the following month. 

     

    I’m walking through Dublin. From Rialto to Stephen’s Green. I stayed in a friend’s house the night before. Slept on the floor. Now I hear a slapping sound. My foot on the pavement. 

     

    It’s a strange thing, like my foot has gone to sleep and is limp. It passes. I immediately relate it to the shoes I’m wearing, brown and red funky things with no support whatsoever. I wonder if I damaged my foot on the mountain climb last year. So I go into the outdoors shop off Grafton Street, upstairs to the footwear department, and start trying on a pair of running shoes, determined to give my foot support. 

     

    I ask the salesman for assistance. This is a mountaineering shop so I feel confident he will understand and I start to explain how I’d climbed a Himalayan mountain last year but I’d been wearing these awful shoes with no support and now my foot has started to flop in them and had he ever seen something like that before? He looks at me. My innocence meets his concern. No, I’ve never seen anything like that before, he says. The look in his eyes becomes a twinge in my stomach. 

     

    My first diagnosis is by a shoe salesman. 

      

     

    Baggot Street Bridge 

     

    I’m sitting on an uncomfortable stool in the dingy basement apartment of a friend from college when a girl walks into the room. She is tall, slender and quite easily the most beautiful girl I have ever seen. She is crossing the back of the room with a friend of mine. My first thought is simply, How the hell did he get her? She is a girl from Ardee, County Louth. She is out of my league. Her name is Ruth. 

     

     

     I spent my whole life looking for Ruth. 

     

     

    Years after first seeing her, I’m walking down O’Connell Street with my parents, after coming out of the Savoy cinema, and I pass Ruth at a bus stop outside Clery’s department store. I stop my parents and run back to her. We talk but behind our words, in our eyes meeting, something is there. I ask for her number and she opens her bag. Her hair is short and she looks stunning in a simple navy winter coat. I’m cheeky. I see her pay slip in her bag and reach in, pretending to have a look. Ruth gives me her number, we say goodbye and I catch up with my parents. It’s Thursday. 

     

    I don’t call. It’s too important. 

     

    The following Monday, I’m walking up from Lansdowne station into work. Coming back from working in Ukraine, I had got a job no one else wanted. It was an accountancy practice with one accountant. That was the staff. Me and him. My job was to sit in a little back office and answer the phone. It never rang. Ever. I read all day. It was so quiet that the recruitment agency said no one had lasted more than a week in the place before me. I was getting through a book every three days. Paid to read. I had been there for months. 

     

    I’m standing at Baggot Street Bridge, waiting to cross in a crowd of commuters. It’s pre-coffee early and I’m half asleep. The girl in front of me is wearing headphones. Her coat is navy. I realise and slowly reach out to touch her shoulder. Ruth turns around. She is half asleep and it takes her a moment to recognise me. She goes red. I go red. She fumbles off her headphones and the crowd crosses the bridge without us. 

     

    It takes a few moments of conversation to figure out that she works just down the road from me and has done for months. That we both walk the same way to work, at the same time, and have done for months. But that we hadn’t met until four days after we bumped into each other for the first time in years. Wonderfully weird. 

     

    Embarrassed beyond reason, we hurry off. 

     

     

    We meet for lunch in Searson’s pub on Baggot Street. Two large bowls of pasta sit between us. But my stomach is constricted. So is Ruth’s. We cannot eat. It is embarrassing. It is love. 

     

     

    At the weekend we go to the cinema with some friends. I sit beside Ruth. The air is magnetically charged with my desire to touch her. 

     

     

    We kiss for the first time a week after, in a basement nightclub off Wicklow Street, in the shadow of a doorway. 

     

  • Reviews
    International Bestseller 

    A People Book of the Week 

    A Barnes & Noble Discover Pick 

    An iBooks Best Book of the Month 

    An Amazon Best Memoir of the Month 

     

    “A fiercely eloquent testament to making the most out of every moment we're given.” 

     —People, Book of the Week 

     

    “Beautifully written. Utterly life-affirming.” 

     —Alan Rickman 

      

    “A beautiful love story - in its essence that's what this is. Survival stories are not about surviving, they're inherently about what makes a survivor push through. A desire to remain in the light of all creation, even as a darkening is taking place. A darkening which happens to us all.” 

    Colin Farrell 

     

    “[A] gripping, affecting, sometimes funny read by a natural-born storyteller with something to say about the weight and the value of a life...If you need a story of courage, of heart, of coming back for more, of love and struggle and the power of both, It's Not Yet Dark could be the elusive thing you're after.” 

    Joseph O'Connor 

     

    "Less a memoir of dying than a memoir of refusing to die...Vibrant." 

    Minneapolis Star-Tribune 

     

    "In brief, often luminous vignettes, Fitzmaurice tells pieces of his story...Brave and honest, his memoir provides a fierce, sparkling constellation of small lights that gleam against the gathering dark." 

    Shelf Awareness 

     

    "Powerful and moving...The heart of this inspirational book is Fitzmaurice's perseverance ('They gave me my life and I wouldn’t give it up') and his unflagging belief 'in the power to take what life throws at you and slowly to come back, to take all you have and not be crushed by sadness and loss.'" 

    Publishers Weekly 

     

    "A fine and heartfelt memoir from an author hopeful in his determination to endure against the odds: 'What remains is desire.'" 

    Kirkus 

     

    "Darkly funny and emotional, Fitzmaurice’s story is as inspirational as memoirs get – he even wrote the entire book with an eye-gaze computer. This is a true story about family, health, and the true meaning of life that you won’t want to miss." 

    BookTrib 

     

    "A fierce, tender, and compelling examination of what it means to live." 

    The Brooklyn Bugle 

     

    "Daringly, brutally poignant, It’s Not Yet Dark is the closest thing to pure love that I have read since The Shack and just as memorable...Like an Irish mist, It’s Not Yet Dark unveils all pretense of living with an illness that kills daily, that can terminate life at any moment, leaving the brilliance and elegance of a writer at his best, peeling his life like an onion, living with presence and love at every opportunity. Thrillingly, achingly authentic prose that reveals an inner life of one human being with the courage to live fully every single moment of his life.  Compromised as it is, Simon Fitzmaurice’s life is a complete and miraculous act of loving life." 

    The Review Broads 

     

    Select Irish Praise for It’s Not Yet Dark 

      

    #1 Bestseller 

      

     “Part memoir, part stark document of the way [Simon] and his family have dealt with motor neuron disease, and part fierce celebration of being alive, It's Not Yet Dark is powerful, gripping and compelling.” 

    The Irish Times 

      

    “Sparsely and beautifully written...the human spirit and will to live shines out of these pages...By the time you reach the end of this book, with tears of admiration, sadness and frustration in your eyes, the question is no longer why would you want to live...but how could you not.” 

    Irish Independent 

      

    “The word 'inspirational' is over-used, but if ever a book deserved this epithet, this is it.” 

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